Ever been misdiagnosed? [Archive] - Glock Talk

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Glock&KimberLady
10-14-2012, 20:24
Lessee...the worst one was being definitively told I had sarcoma after an MRI... and spending six agonzing weeks wondering if I was going to lose my right foot and leg from the knee down...until I found a doc with some BALLS to cut it out and let me know it was a benign item.

I have had four doctors (two of them notable) who gave differing diagnoses on the cause of my dysphagia (all of them incorrect). And I still choke when I eat. :steamed: One of those doctors told me he was pretty sure I had a Pancoast tumor, which upon Googling, scared the living daylights out of me until the CT came back all clear. (It's an odd lung cancer)

More recently, a lump in my abdomen that flipped out my GP turned out to be overdevloped muscles from snowboarding. :rofl:

Had surgery on a wonky knee (discoid meniscus with horizontal tear) by a doc whom I later found out had *zero* experience with that particular deformity. I'll see how snowboarding affects it this season (with a better brace) before I try again, with a different surgeon.

Anyone had a misdiagnosis...or three....with a doc?

I think Carlin said it best - doctors are guesswork in white coats.

Side note - if you Google a combination of symptoms, you will in all likelihood scare the crap out of yourself. Don't Google symptoms.

MB-G26
10-14-2012, 20:27
yes, btdt.

Words filters here prevent me from speaking much further on the topic.

Angry Fist
10-14-2012, 20:29
My daughter was. They called it a throat infection, which turned out to be a UTI another hospital found out. She had to suffer for days because the antibiotics sterilized her samples before it could be properly diagnosed.

Glock&KimberLady
10-14-2012, 20:32
yes, btdt.

Words filters here prevent me from speaking much further on the topic.

:alex:

Yes, love, I remember. PM me with how you've been! :hugs:

Glock&KimberLady
10-14-2012, 20:34
My daughter was. They called it a throat infection, which turned out to be a UTI another hospital found out. She had to suffer for days because the antibiotics sterilized her samples before it could be properly diagnosed.

I take it she was young? UTIs are nothing to sniff at in girls, they head onward and upward and when they get to your kidneys, they can make you wish you were dead.

Harper
10-14-2012, 20:36
I have had four doctors (two of them notable) who gave differing diagnoses on the cause of my dysphagia (all of them incorrect). And I still choke when I eat. :steamed:

Have you been tested for eosinophilic esophagitis? That's the first thing that came to mind.

mr00jimbo
10-14-2012, 20:37
I was running and stepped into a hidden 1 foot deep hole in the grass, which really hurt because my foot stayed in place and my body went forward.
Went to the hospital, Xray said I fractured my fifth metatarsal so they put me in a cast. Went to see my GP, and he showed me what the Xray said: "No fracture found"

Not life ending but it said right on the Xray report that I didn't break my foot, but the ER Dr (young woman) said I did.
Ugh.

SMOKEin
10-14-2012, 20:39
I was diagnosed with systemic lupus after have some skim samples tested. I was sent to a specialist that couldn't see me for a few weeks and of course I hit Google and was fully convinced I was soon to be a goner. I went to the specialist and after a round of tests, he advised me that false positives aren't that uncommon. I was furious and overjoyed at the same time.

Glock&KimberLady
10-14-2012, 20:41
Have you been tested for eosinophilic esophagitis? That's the first thing that came to mind.

Yep, the last doc at Cedars-Sinai had me allergy tested...and discovered (much to his dismay) that I am "the most non-allergenic person" he'd ever seen. I went down to see him, and after a scope and a VERY VERY ***ing unpleasant manometry that lasted over two hours (I felt like a lab rat), he wanted to do more barium tests, more manometries, and more scopes. I went back to Idaho, set up for the tests, and found out I was pregnant. I figured unless I got to where I couldn't eat at all, I was done with years of tests, Botox, stretches, drugs, and guesses.

Glock&KimberLady
10-14-2012, 20:44
I was diagnosed with systemic lupus after have some skim samples tested. I was sent to a specialist that couldn't see me for a few weeks and of course I hit Google and was fully convinced I was soon to be a goner. I went to the specialist and after a round of tests, he advised me that false positives aren't that uncommon. I was furious and overjoyed at the same time.

ZOMG, I know how that feels. I told my mom I got to go through the early stages of cancer diagnosis up to the chemo point until I finally had the surgery to prove it wasn't cancer. Hair-raising. (No one would touch me, cancer docs didn't want it to spread by improperly removing it or impair my ability to walk if it WAS benign, orthos didn't want to deal with cancer)

Averageman
10-14-2012, 20:49
I went to the Dentist in the Military and he found a "Tumor" in my jaw, so we remove it on the spot.
Now at 20 I figured thats it pretty close to the noggin for this not to be serious.
Come to find out I have a partial 3rd set of undeveloped teeth.
Scared the crap out of me.

Harper
10-14-2012, 20:50
Yep, the last doc at Cedars-Sinai had me allergy tested...and discovered (much to his dismay) that I am "the most non-allergenic person" he'd ever seen.

I'm not an expert but I thought the test for EE was a biopsy were they test for levels of eosinophils in the esophagus because they usually aren't even entirely sure if it's caused by food allergies or environmental allergies or something else. I didn't know pregnancy could cause dysphagia.

dango
10-14-2012, 20:51
In a nut shell , six doctors later...................! :steamed:

One Doctor said that it was symtimatic of Alcohol with-drawl ,

Truely mirraculous for I don't drink.

I feel your anger........!

Scott3670
10-14-2012, 21:18
6 years ago I had an episode where I had terrible gut pain (lower abdomen) and ended up in the ER. The initial was a hernia. The gastroenterologist came in and corrected the diagnosis to diverticulitis. They did a barium enema and other tests hich showed that my colon was inflamed, etc.

I was admitted for a week of antibiotic therapy and it seemed to work a bit. The last piece of advice from the gastroenterologist was to get a colonoscopy. I did it a week later and it turned out I had a very early stage of colon cancer.

I'm not sure that I would classify this as a misdiagnosis, rather one that wasn't thorough enough. The bottom line is that I was wise enough to take the doc's advice and get allow them to serve a search warrant on my colon, which literally saved my life.

czsmithGT
10-14-2012, 21:26
I've been misdiagnosed. It goes with the territory of being sick. All things considered, I don't know why anyone would want to go through the time, hassle and cost of becoming a doctor these days. Doc Adams is my hero.

CBennett
10-14-2012, 21:27
yes, instead of ulcerative colitis I had Crohns Disease lucky me

Altaris
10-14-2012, 21:28
While not life threatening, it did hurt and was really annoying.

After I twisted my knee funny while hiking the dr told me I just had a bruised knee, and to take some advil and rest it. It still hurt bad after a week, so I went to another dr who found out that I really tore my MCL.

Glock&KimberLady
10-14-2012, 21:28
I'm not an expert but I thought the test for EE was a biopsy were they test for levels of eosinophils in the esophagus because they usually aren't even entirely sure if it's caused by food allergies or environmental allergies or something else. I didn't know pregnancy could cause dysphagia.

It doesn't. I quit the tests and such because you don't do barium swallows when pregnant. I've had dysphagia for years, gradually worsening. After nearly choking to death on a burrito, I'd had enough and in conjunction with a 60+ lb weight loss, figured I should get it checked.

Doc wanted comprehensive allergy tests done, and determined between that, the scope appearance, and the scrape they took of my throat that EE wasn't the issue. My understanding is if you have EE to the point where dysphagia is an issue, the eosinophils show up in your bloodstream as well?

Best he could do was retrograde peristalsis and incredibly high swallowing pressures. He was like a kid with a science experiment, brought in two students during the manometry, and was all but rubbing his hands together at the thought of "all the testing we need to do". He was bent when I got pregnant because it meant the end of the experiment.

It was a little disturbing how jazzed he was, but I told myself he was just being thorough. :dunno:

ArtificialGrape
10-14-2012, 21:38
More of an inexcusable missed diagnosis than a misdiagnosis.

When our oldest daughter was 8 she had become lethargic, her face always seemed dark and sunken, and she began bedwetting -- many of you know where this is going, but we didn't at the time -- so we took her to the pediatrician and she had dropped from 55 pounds to 48 pounds since her previous visit less than 6 months earlier.

He conducted the exam and did not have any specific recommendation other than to schedule a follow-up over the summer -- this was Friday, March 7th, 2003. My wife not at all content with his answer spent the weekend looking into it.

As you might imagine, everything pointed to juvenile diabetes. We took her back in on Monday and asked to have her tested. Yep, blood sugar in the 400s, and could well have been on the verge of a diabetic coma had we merely listened and ignored it for another 3 months.

Next March will mark 10 years of an amazing young woman thriving with type I diabetes.

-ArtificialGrape

Harper
10-14-2012, 21:39
Doc wanted comprehensive allergy tests done, and determined between that, the scope appearance, and the scrape they took of my throat that EE wasn't the issue. My understanding is if you have EE to the point where dysphagia is an issue, the eosinophils show up in your bloodstream as well?


I don't think so. I have EE and my blood Eosinophil level was within the normal range last time I had blood work done. I'm guessing they tested the 'scrape' for eosinophils? I don't know, I'm just asking because the two gastros I've been to did a biopsy for eosinophils.
Also acid reflux is a big factor for me too. I notice a big difference when it's under control and when it's not.

Angry Fist
10-14-2012, 21:51
I take it she was young? UTIs are nothing to sniff at in girls, they head onward and upward and when they get to your kidneys, they can make you wish you were dead.
She was 3 at the time. We spent 3 days, all of New Year's at Capital Region in Jeff City. We (and everyone we know) call Lake Regional the "Meatgrinder". Nevermind all 3 of them were born there. :faint:

nursetim
10-14-2012, 22:04
My daughter was. They called it a throat infection, which turned out to be a UTI another hospital found out. She had to suffer for days because the antibiotics sterilized her samples before it could be properly diagnosed.

Are you sure it wasn't URI? Cause a UTI is an entirely different system. If it was indeed a diagnosis of UTI, kindly tell me who the doctor was so I can avoid them at all cost.

Drain You
10-14-2012, 22:07
Yes. One doctor said we have multiple personalities.

ScottieG59
10-14-2012, 22:31
I guess this question is whether a misdiagnosis was discovered; I expect many are never discovered.

Unfortunately, we all either know of or have heard of people being misdiagnosed with grave results. My father was killed by a doctor and his nurse. My grandson was killed by a doctor. It is a sad and painful fact that doctors are as imperfect as the rest of us. The difference is that people sometimes die when they go for help.

I remember reading in a book, I think it was "The Making of a Doctor." One of the things the author stated was that you have to be able to accept the fact you will make mistakes and those mistakes may cause your patient to die. If that reality is to hard to accept, it is best to seek another profession.

The issue is that some do not make mistakes out of human nature, but of negligence or willful misconduct. Of course, we have a legal system to help determine the facts. It too is imperfect.

TKM
10-14-2012, 22:38
Found a lump. About four inches from a previous cancer site.

First doc they sent me to may have been thirty, still had acne.

He said he couldn't feel anything and to come back in three months if it didn't go away.

I pointed out that it was the size of his unit (he was of Asian descent), visible through the skin and that he was fired. I retrieved my co-pay up front and worked my down the list.

Next guy said, yup that's coming out.

Malignant melanoma, again. Lymph nodes are over-rated anyway.

A few others, but that was the one most likely to have killed me.

nursetim
10-14-2012, 23:15
Holy crap TKM, did you put his finger on it, then again if it was showing you shouldn't need to. Holy crap!

Trapped_in_Kali
10-14-2012, 23:40
My doctor died so I don't have to go to the doctor anymore.

BUT my wife collapsed & almost died, then was rushed to Emergency. They told her it was indigestion. It was an aneurysm.

I don't trust doctors as far as I can throw their German luxury cars. If you want to die go to a hospital.

Detectorist
10-14-2012, 23:40
Long time ago I had a very wonderful and beautiful girlfriend. She was Hispanic but with very fair skin and blue eyes. One day, while she was wearing my favorite bikini, I noticed an oddly shaped mole on her lovely back. It was pretty big and stood out. I then immediately called another friend, who I went to school with, and asked if her Father, a well known Dermatologist, who was also a friend, could see my GF first thing Monday morning. She got back to me and said that her Dad was busy until the following week.

I then spoke to him directly. I described the mole and how it felt. He saw her on Monday. Surgeries followed by chemo and radiation couldn't keep her alive. She passed within six months.

What really got me was that she had a complete physical 6 months earlier and the GP did not catch it. Just saying. No one is perfect.

She was the second GF in 5 years I lost to Cancer.

frizz
10-15-2012, 02:33
I'm not sure that I would classify this as a misdiagnosis, rather one that wasn't thorough enough.


Not catching something is a misdiagnosis, I think.

NEOH212
10-15-2012, 03:39
I have.


I was told all through Collage that I was a liberal. Much to their dismay, I'm very Conservative!

:wavey:

Mrs.Cicero
10-15-2012, 07:02
The ER docs waited 12 hours to do the MRI that told them instead of severe indigestion, my grandmother had a dissecting aortic aneurysm. They life-flighted her to the Cleveland Clinic. The aneurysm burst just after they cracked her chest. The entire surgical team visited her in intensive care three days later, to tell her they had no idea why she was still alive. She survived another year, though she spent all but two weeks of it in various rehab facilities due to many complications.

Different ER doc misdiagnosed my uncle with a heart attack, for which they gave him clot-busters. He bled out of the dissecting aortic aneurysm before they realized they were wrong. He was 54.

On my part, it's not so much that they misdiagnose me, it's that they cannot diagnose me at all. I get the trash basket "fibromylagia" dx, and no effective treatment (so far) beyond my own discovering that eliminating gluten entirely from my diet really takes away the pain. It just doesn't have any effect on the other symptoms, unfortunately.

And my brother can't swallow hardly anything anymore, either. The doctors did their bazillion tests, and still have no idea why. He's pretty much on a diet of soup and sludge now. Doesn't even go out to eat anymore because he cannot predict if the cough/gag/puke reflex will kick in on what food they have available.

Dennis in MA
10-15-2012, 07:16
All of a sudden, I'm enjoying the expensive healthcare in the Northeast. Outside of a bad OB/GYN for my wife's first pregnancy, we've gotten nothing but the best.

OK - two. My daughter's head doc last year. (Concussion and headaches.) He was a head-case alright. He was very very very skilled. He just never listened. When he did, it was for 3 seconds at a time and he'd rush off into a different direction. We dumped him and got another - reputable name (Children's Hospital - Boston) and succeeded with flying colors.

They ARE here, it's just easy to avoid them.

cmb19
10-15-2012, 07:29
Doctors/nurses aren't bad..people are bad.

I wasn't misdiagnosed, I had some problems with a couple people, but mostly they just didn't know what was wrong with me.
I've only been sick once. The first hospital, there was an idiot doctor that has since disappeared from the area. He wanted to only do what he wanted when I came into the ER, he actually got into fights with other doctors..wanted to do this testing. Didn't want to do the testing they wanted. He came closest to killing me. He tried to kick out the kidney doctor, well, my kidneys were failing. They couldn't even do an MRI. The other doctors came together and banned him from being near me.

The 2nd hospital, I was in a "coma" from the drugs, but I always had the same nurses. One night, I ended up with a replacement and she somehow gave me the wrong meds or too much or something. Every morning, they would lower my meds enough to get a reaction out of me, but that morning I didn't wake up...not that I was ever actually awake, just moving. It took awhile to decide if I had a stroke or not. My parents never even saw that nurse at the hospital again.

The 3rd hospital, I was awake for the last 2 weeks. I had 1 nurse that was fat, lazy, and too stupid to properly do her job. I ended up angry and she never came to see me again. My biggest issue with her, was when I had my trache out. Well, they tape gauze over the open hole in your throat, if you didn't know. She decided to put that AWFUL tape directly onto the skin of the open hole...THEN put gauze on top of the tape. She tried to force me to have a flu shot and pneumonia shot..head nurse was not happy, I wasn't supposed to have them. She couldn't get the balloon on my catheter to deflate so she decide she would just pull and see if it came out.

I had AT LEAST 100 doctors and nurses in my 2 months in hospitals and only those few idiots. There's idiots in every profession.

Angry Fist
10-15-2012, 07:46
Are you sure it wasn't URI? Cause a UTI is an entirely different system. If it was indeed a diagnosis of UTI, kindly tell me who the doctor was so I can avoid them at all cost.
It was a UTI, with a mild kidney infection. Don't get sick at Lake of the Ozarks. :wavey:

byf43
10-15-2012, 08:01
I get bronchitis twice a year. Every year. (This is caused by allergies, I have come to find out.)
One PA diagnosed me as having COPD, due to my years of smoking. (She also told me that I must quit smoking!! Hmmmmmm. . . . I had quit 10 years prior to her telling me!)

This young lady was historically quite accurate in diagnosing my 'ailments'.

I wasn't getting any better, so, she sent me to a Pulmonary Specialist.
He put me through some tests, and concluded that I have Asthma, and at that time, I had Pneumonia!!!!!

nam02G
10-15-2012, 08:58
Not me but a late friend of mine. She was having difficulty breathing so she went to see her doctor. I later found out she saw the same phyicians assistant that I did. He diagonosed her as having developed asthma and gave her an inhaler. The inhaler provided no relief and she saw him again with the same diagosis. I'm not sure of the timeline but she changed insurance and was forced to change doctors. This time she saw a very good doctor who discovered that she had lung cancer. It was a lung cancer that is typical of second hand smokers, she never smoked but her husband did. The removal of her left lung prolonged her life for about a year until the cancer re-emerged and there was nothing that could be done.

Haldor
10-15-2012, 10:15
20 years ago I saw our family MD for an ear ache. Doc prescribed antibiotics. A week later my mild fungal infection had turned into mushrooms growing in my ear. Got referred to an ENT specialist who was livid the minute he took a look inside my ear.

The antibiotics I was on were killing off the local fauna in my ears and clearing the way for the fungal infection to take off.

I lost some of my hearing in the effected ear and have sinus drainage problems on the side to this day (due to scarring). Color me less than impressed.

airmotive
10-15-2012, 10:27
I always thought my wife was just a little wierd.
Turns out, she's retarded.

Okay....perhaps I'm oversimplifying.
Aspergers is on the autism spectrum.
I just needle her a bit. She's a better shot than I am, so I can't take it too far. But it took nearly 4 decades for her doc to reach that conclusion.

Glock&KimberLady
10-15-2012, 13:12
Damn, none of mine is serious compared to somemof the stuff you guys are posting. Makes me a tidge nervous about the jubbly-smashing X-ray coming up...

m2hmghb
10-15-2012, 13:31
Yes. I had Lyme at age 7, bullseye rash symptoms and everything but I never developed an antibody reaction to give a positive result. Fast forward 5 years and I'm constantly sick with a low grade fever, aches, pains, malaise, severe fatigue, mood swings, insomnia, depression, rage and so on so they retest me for Lyme which was negative. I then start being sent to all over, Children's Hospital in Philly, Robert Woods in New Brunswick, two or three pediatric rheumatologists, GPs and then finally they sent me to a shrink who put me on zoloft at 13(which almost killed me, they didn't tell you that it could worsen the depression and you might need to have your dosage adjusted, instead they kept upping my dosage which lead to a suicidal ideation). I was diagnosed as having arthritis/juvenile rheumatoid arthritis with severe depression. It was all from Lyme and Babesiosis.

As a result of their misdiagnosis I now have problems with my knees, fybromyalgia, chronic fatigue syndrome, chronic headaches and migraines, sleep cycle disturbances, chronic pain, an extremely sensitive stomach, and an inability to function in a way which would allow me to hold a job. An example would be some days I will be fine for a few hours then I have a flareup and I end up having to go to bed, other days it's all I can do to get on my computer and so on.

Thankfully the depression and other neurological problems have gone away since I stopped taking zoloft, I'll never again touch an SSRI.

jtull7
10-15-2012, 13:42
I saw a TV show recently on Animal Planet where the little girl of the family would eat nothing but cat food. Very weird.

BigBull 301
10-15-2012, 14:38
Yep...for 6 years.
Finally told the doc this is BS! Something is seriously wrong and we're not leaving with another script. The wife and I ran down thru the symptoms and the timeline and the drugs thrown at the symptoms. Started to finally put it all together, get a blood test, then a CT, then an MRI. Brain tumor on my pituitary gland. Benign and removed most of it, removed again, the radiation for a month. Hopefully it stays put!

Bottom line is get involved, don't be passive and let them run you through the drug a month program.

GeorgiaGlocker
10-15-2012, 15:09
About 15 years ago my son was playing with two of his friends when he was hit on the top of his head with a piece of iron. Of course, it bled like crazy and he was taken to our local ER. The ER doc did not take any x-rays and just deceided to sew him up.

Early the next morning our son was complaining of a terrible headache so we called our family doc. He ordered a CT scan that mornng and it showed a depressed skull facture plain as day. We were immediately sent to a neurosurgeon and he was in the operating room for 2 hours. The neuro doc told us it was worse than he anticapated. My son spent the first night in ICU (precautionary) and another 4 days in the hospital.

Once the neuro doc opened him back up, he discovered that the ER doc had left some skin and hair inside his skull and there was already signs of infection. He told us that if this would have been left inside his skull any longer there would have been some major problems to deal with.

Needless to say, my wife spoke to the chief of staff (he had already heard about my sons condition) of our local hospital about this ER doc and our great dissatisfaction with the treatment he had received. The next day the chief of staff told my wife that the ER doc was no longer employed at the hospital.

Glock&KimberLady
10-15-2012, 15:15
Some of these stories make me go

JESUS CHRIST :alex:

No more bellyaching on my part. None of mine have been serious...just damned stressful.

Mrs. VR
10-15-2012, 15:52
I know a lot of people know this, but we went three months or so believing VR had a 1/3 chance of dying from what he has. Doctor at Hopkins gave us a diagnosis, and said "go home and look it up online!" :faint:

Turned out to be something even weirder, but a whole lot less likely to off him at a moments notice.

All things considered, I agree, I'd rather have it go that way than the opposite.

byf43
10-15-2012, 18:26
1996.
Started having severe headaches and 'dizzy spells'.
The only way I could sleep, is to put one foot on the floor, to stop the spinning.
I could cough and fall down, from vertigo.

Doctor called for vision tests and hearing tests.
Referred to ENT.
Doctor called for CT scans of head/neck to rule out brain tumor.
I KNEW there was NO tumor. (Nothing survives in a vacuum!!!)

Doctors said that I should 'get my affairs in order'.
"What affairs???? I'm married and faithful to my wife.":whistling:

Additional tests revealed a middle ear infection.

I lost 4 months of work (I've got GREAT Sick Leave!) and mega-doses of antibiotics got the infection under control.

IGotIt
10-15-2012, 18:53
While not life threatening, it did hurt and was really annoying.

After I twisted my knee funny while hiking the dr told me I just had a bruised knee, and to take some advil and rest it. It still hurt bad after a week, so I went to another dr who found out that I really tore my MCL.

Same here. I jumped a fence and heard a "pop" upon landing. My knee became swollen to the size of a basketball. Diagnosis? Sprained knee. 11 days later, another doctor found both the ACL and the MCL were both torn in two. Reconstruction surgery was the next day, first up on the table.

When I was about 11 a kid flipped me to the ground while we goofing around. Arm hurt, so xrays were taken. Diagnosis? Bruised muscle. Three days later someone reviewed the films and found the upper arm bone was broken.

guanoman
10-16-2012, 08:04
Lost 35 lbs in 5 weeks. Dr #1 said it was an ulcer - negative. Dr. #2 said it was HIV - negative. Dr. #3 said I was only looking for attention - negative. Dr #4 said it was hepatitis - negative. Dr #5 said it was hepatic cancer - tumor found. She said I'd be dead by Dec '96. I'm still here.... so is the tumor. Whatever, I'll accept this and and am happy I've been able to perpetuate my genetic material into a handful of guanominis.

Medicine is definitely an inexact science.

Reyn
10-16-2012, 08:08
Wasn't there a guy in England or might have been here that was told he had a few months to live. Cancer maybe? Anyway,he quit his job and spent his savings only to find the diagnoses was wrong? Think he sued but I don't recall the outcome.

nursetim
10-16-2012, 09:23
It was a UTI, with a mild kidney infection. Don't get sick at Lake of the Ozarks. :wavey:

Causing a sore throat? No urinary symptoms, frequency, cramping, pain during or after peeing? None of that? I gotta tell you, if someone came in complaining of a sore throat, I would never in a million years look at the urinary system.

Glock&KimberLady
10-16-2012, 13:51
Causing a sore throat? No urinary symptoms, frequency, cramping, pain during or after peeing? None of that? I gotta tell you, if someone came in complaining of a sore throat, I would never in a million years look at the urinary system.

Sometimes dependent on age. The 3 year old Terror has come in shouting MY ELBOW HUTTTS while blood is streaming down her knee...

larry_minn
10-16-2012, 13:55
Easier question is. "Have you ever been to hospital?" Dr.s often seem to not LISTEN to patients. I alwasy thought it was a advantage for Dr. over Vet that pt could talk.
The Dr. gets idea in head and keeps at it. I got tested for TB 3x in a month. Plus X-ray to check "for TB" Once they get idea its like a dog with bone.

nursetim
10-16-2012, 16:03
Medical providers can be a tenacious bunch. The key to a good one is know when to find someone smarter/more experienced that you that can check the ego.

This thread scares the crap out of me on a professional level. I never want to be the one that causes this kind of harm, who does?

nursetim
10-16-2012, 16:06
Sometimes dependent on age. The 3 year old Terror has come in shouting MY ELBOW HUTTTS while blood is streaming down her knee...

Unless they are peeing out of their mouth, the two systems are not really related, save being in the same body. Sure you could have a urogastric fistula, that could be the cause of the sore throat/UTI. But if that is the case, you've got much bigger problems me bucko.

Glock&KimberLady
10-16-2012, 19:32
Medical providers can be a tenacious bunch. The key to a good one is know when to find someone smarter/more experienced that you that can check the ego.

This thread scares the crap out of me on a professional level. I never want to be the one that causes this kind of harm, who does?

I don't think docs are setting out to do harm. ("Primum non nocere", right?)

However, I think docs are like people...because they are people...some are spectacular, some are good, some are bad, and some are breathtakingly awful.

As for the ego, I've run into twice...once with the knee doc who refused to believe that his surgery didn't magically eradicate all pain and I wasn't tap-dancing the second I woke up, and the second a rather renowned dysphagia specialist who actually yelled at me on the phone when I told him his whamodyne Botox treatment evinced no change (except for the four places it leaked into my mediastinum, landing me in Virginia Mason hospital overnight *shudder*)

I like docs who understand that I'm not a mooing cow who says, "Ohhh, errr, derp...sarcoma somethin or other mmm hmmm" and then goes home with rainbows and squares dancing in my head. I had both sides of the spectrum nailed down on that misdiagnosis...from worst ( below the knee amputation but metastasis to brain, lungs, etc.) to best...below the knee amputation, chemo and radiation, long, happy life filled with adaptive snowboarding. (Actually, "best" wound up being a benign fibroma *snort*)

I don't like surprises and I want to know EXACTLY what you're cutting off, putting in my system, and testing me for...some docs don't like that (particularly older ones, I've noticed)

By the way, without fawning too much, I think nurses are the BOMB...they usually end up keeping your ass alive after the cutting and sewing is done, as well as taking care of you, giving you your dope :freak:, explaining stuff, and yeah, sometimes being a shoulder to cry on or a face to rant toward. That, and the ratio of bad/dippy/clueless/cold docs to bad nurses has been skewed toward the doc side. I have had maybe two "bad" nurses in multiple medical situations.

Wow...that was long... :soap:

Clutch Cargo
10-16-2012, 19:46
Last November, I went to the VA with chronic back pain. They took x rays and told me to take Motrin. NEVER TRUST THE VA.
I went to my family doc who ordered an MRI. The MRI showed my entire lumbar spine to be 33% degerated. He put me on Vicodin to get through the Holiday season. Family doc referred me to a spine specialist/pain management practice. $400,000 for 2 surgeries and I'm still on Morphine and oxycodone. My right arm is weak, my right leg has atrophied, and my right foot is paralyzed. I've got lots of physical therapy and rehab in front of me.
I feel the VA owes me for all the co-pays etc. I estimate I've paid $6000 out of pocket. That number is growing.

One good thing. My spine doc collects WWII automatic weapons.

vikingsoftpaw
10-16-2012, 19:55
Easier question is. "Have you ever been to hospital?" Dr.s often seem to not LISTEN to patients. I alwasy thought it was a advantage for Dr. over Vet that pt could talk.

That is the most scarey revelation. My A&P instructor, who is also an MD stated that 80% of the information for a diagnosis is the Patient History and Physical examination.

nursetim
10-16-2012, 21:04
That is the most scarey revelation. My A&P instructor, who is also an MD stated that 80% of the information for a diagnosis is the Patient History and Physical examination.

True enough and yet there is not enough time in the visit to do this properly.

Heard of an MD seeing 50 Pt.s a day. :shocked: I just do not see how this is possible. Especially when Pt.s come in with a shopping list of complaints. Or worse yet, you take the time to do a proper H&P and come up with 6 new diagnoses!:steamed: all in 30 min, that actually turns into an hour. Because they need an hour. Then you are running late and pissing off the other patients and they walk out.:upeyes:

Best yet, you get ambushed with cardiac symptoms from a week ago that they thought was indigestion! Holy crap. None of the family had the first fracking clue to call 911!

Sorry, what were we talking about?:dunno:

JLB768
10-16-2012, 21:08
I was misdiagosed with Emphysema/COPD, last several Dr appts have showed normal lung function/blood-ox levels.

nursetim
10-16-2012, 21:22
I was misdiagosed with Emphysema/COPD, last several Dr appts have showed normal lung function/blood-ox levels.

Was this by a GP or a lung doctor?

JLB768
10-16-2012, 21:34
I was dianosed by a Nurse Practitioner...

SpoiledBySig
10-16-2012, 21:49
In 2002, I was 43 and was told I had bladder cancer. This was told to me by a Nefrologist (kidney specialist). They believed that blood in my urine samples (dip stick test) was indicative to having bladder cancer. Even in my young 20's, my urine samples indicated blood in the urine.

I was in a severe depression as a direct result and about 3-4 weeks later I was sent to a Urologist MD, who determined that I had so many blood vessels in my bladder that my urine tests would always show blood in the urine and his exam concluded I did not have cancer.

Now, when I have my yearly physical exams and have to give urine samples I'm sure to mention this fact to the lab testers and the Physician(s). This in no way means I'll never have cancer or bladder cancer, but I was very happy with the results from the Urologist.

I can't tell you enough how happy I was that this was a misdiagnosis. The Nefrologist who told me in person she believed I had bladder cancer then tried to deny to my wife that she ever indicated that I had bladder cancer.

Lesson learned is to always..I MEAN ALWAYS...get a 2nd medical opinion.

nursetim
10-16-2012, 23:11
Blood in urine, minus excruciating pain is suspicious. Suspicious means further investigation is warranted. Not, oh I see you have blood in your urine and you're not doubled over in pain. You have bladder cancer. It shouldn't work like that.

JLB768, was it a pulmology NP?

Folks, if some yahoo, even me, looks at you in the exam room and says, you have COPD, or asthma, or bladder CA, or what ever, question it. Asthma and COPD require lung tests that most GP offices do not have. You come in wheezing to beat the band, an asthma diagnosis is very likely once anaphylaxis is ruled out. Suspect diabetes, it's a simple test, UTI, fairly simple and can be diagnosed by simple urine test. But there are other more complicated conditions it COULD be for every one we think it is. Just don't take serious new as gospel. You have to be savvy consumers now.

nursetim
10-16-2012, 23:11
Double post somehow

JLB768
10-17-2012, 02:20
JLB768, was it a pulmology NP?


No, just a GP.

MB-G26
10-17-2012, 02:55
yes, instead of ulcerative colitis I had Crohns Disease lucky me

Lucky I'm stuck just with 'regular' (inflammatory) colitis; from what I've read about Crohns, I don't think I could handle it. Sidenote: my father's long-term gastro told him dad's case of bloody, bloody, ulcerative colitis was the worst case that doc had ever seen. I'm sure his diverticulitis didn't help matters.

fx77
10-17-2012, 06:06
ONe thing is that misdiagnoses listed here are the numerator...what is the denominator to evaluate the inciednce of misdiagnosis?
More and more of this misdiagnosis willshow up as more and more of medical care is left to NP's and PA's..some conditions are too complicated and involve too many systems for which NP or PA education is insufficient to manage (notably in my state their malpractice insurance last year doubled) Many just do not know what they do not know...
Finally my observation is the product coming out of medical school these days is focused on computers and tests..rarely do they listen to the patient and make an accurate clinical diagnosis based on history and exam. They treat tests...then tests beget more tests which lead to procedures not all of which result in salutary outcomes.
My academic surgeon friend says, " I can teach a monkey to operate. I can't teach the monkey when not to operate." :)

MrsKitty
10-17-2012, 16:19
Blood in urine, minus excruciating pain is suspicious. Suspicious means further investigation is warranted. Not, oh I see you have blood in your urine and you're not doubled over in pain. You have bladder cancer. It shouldn't work like that.


I have dealt with blood in my urine my entire life. It's enough that my GPs have always freaked with it. Uros say it's not possible. Almost three years ago, I moved to a new area and had to get all new doctors. On my first visit with my nephrologist, she wanted to do a kidney biopsy on my good kidney (the other one is a misshapen mass of scar tissue that does function but it HURTS all the damn time and it will occasionally throw a stone). She never told me what she was looking for with the biopsy (she said it would scare me to death because she knew I would go straight home and google it) but she was tickled with the path lab's report: thin glomerular basement membrane disease or benign familial hematuria. Basically, the lining in my kidneys is defective and it lets blood pass through during the filtering process. Rarely does this ever turn into anything substantial but it can scare the hell out of you when it looks like the toilet is full of blood.

iluvlabs1
10-17-2012, 16:36
1991...severe chest pains... just moved to the town with wife and 3 young sons... went to see a doctor... diagnosed as gastritus... was given a prescription... entire next week pain continued... come the following Saturday, told the Mrs. I was driving to the emergency room since the pain was so severe... walked into the ER... told the nurse about my pain... blue lights started going off... a team of hospital foks took me into a room and hooked me up.... in about 30 minutes, I met my first-ever cardiologist, who informed me I was having a heart attack..

Mrs. VR
10-17-2012, 16:45
On the flip side, there are some amazing, thoughtful, really GOOD doctors out there. I just had the happiest moment of my day ( well, second happiest, my mom got clear scan results today) when our Rheumatologist called to Let me know she was back from maternity leave, among other things! It took us a looong time to find a great team of doctors for our weird autoimmune stuff, but now that we have it's like night and day.

Inyo Tim
10-17-2012, 17:06
"Ever been misdiagnosed?"
I was mistriaged after being wounded in Vietnam. I'm not blaming the corpsman. They do a good job in the worst of circumstances. One came and bandaged my shoulder wound and gave me a shot of pain killer. What he thought was a grazing shot to my shoulder was an entry wound, the bullet traveling down through my lung and up against my spine.
I woke up from the shot just as it was getting dark. We were told any person without a leg wound or a wound too serious to walk, would have to make it back to our lines on their own power. Another Marine found me slowly crawling back up the hill by myself in the dark. He stayed with me through the night until we made it back. Several times we heard the NVA talking near us in the dark. Going up that hill was the hardest thing I've ever done.

RYT 2BER
10-17-2012, 18:25
This thread sucks and is awfully depressing!

nursetim
10-17-2012, 20:41
I second that emotion. But it's kind of like a bad tooth. You putting your tongue on it to see if it still hurts.

Detectorist
10-17-2012, 21:18
90% of these mistakes could have been prevented by a second opinion.

Get to know your body so you can tell when something is not right.

Cochese
10-17-2012, 21:51
I tried to pull over a drunk and he rammed his vehicle into my patrol car as I was getting back in and trying to reverse out of the way. My back and shoulder were hurting pretty bad.

ER sent me home with pain meds. The work comp doc diagnosed it as strains. It wasn't getting any better and was extremely debilitating. I *****ed to my attorney and get referred to a different doc.

Oops, you have a broken collarbone and three torn muscles. AC joint surgery with a 1 cm resection to follow. Yay!

Clutch Cargo
10-17-2012, 22:22
update:
I just got a statement from my medical insurance company. The "VA take Motrin for back pain" story has resulted in $527,000+ in medical expenses. It's not over until my rehab I just started is complete.

Paul53
10-17-2012, 22:29
Big time! Career ER Nurse until back pain got so bad I couldn't stand upright.
Primary doctor: too much iron in my system, need to drain a quart every other month. (never going back to her!) Wrong #1.
Orthopedic surgeon 1: It will pass. Wrong #2.
Orthopedic surgeon 2: Take a month off and you'll be fine. Wrong #3.
Neurologist: weird set of blood tests, some strange results, see a neurosurgeon. Wrong #4.
Rehab doctor: infection in disc in back. See a neurosurgeon. Wrong #5.
Pain specialist wants to inject medication into my spinal canal for the leg pain I don't have. (uh, I'll pass). Wrong #6.
Laser spine institute: we can fix you, need $15,000 cash up front. Don't accept insurance. Wrong #7.
Neurosurgeon: no neurological basis for my symptoms, see a rheumatologist ASAP! Getting warmer.

Now been out of work 6 months, insurance wont pay for out of state docs (in TX). Refer me to non existent docs in 3 cities in-state (in NM). Called the numbers, never heard of that doctor. Living off credit cards now, $40,000 in debt.

Rheumatologist: diagnosed me correctly!! in less than 3 minutes! Blood test confirm I'm + for several auto immune illnesses. Forget about returning to work, take immune suppressants for life, hope for 70% normal functioning at best. ""Polymyositis, Multiple Connective Tissue Disorder." WINNER! At last, but would have preferred something fixable so I could work.

If a career nurse has to go through all this, how does the general public ever survive the healthcare system? Filed bankruptcy (no choice).

MrsKitty
10-17-2012, 22:32
Rheumatologist: diagnosed me correctly!! in less than 3 minutes! Blood test confirm I'm + for several auto immune illnesses. Forget about returning to work, take immune suppressants for life, hope for 70% normal functioning at best. ""Polymyositis, Multiple Connective Tissue Disorder"


My best friend had poly... I know it well. (He is gone now but it is NOT what killed him, didn't even play a part in his death.)

Lone_Wolfe
10-17-2012, 23:15
............( well, second happiest, my mom got clear scan results today)............

:woohoo:

MrsKitty
10-18-2012, 16:34
I just had the happiest moment of my day ( well, second happiest, my mom got clear scan results today)

Awesome! I'm really glad she is still on top!

MB-G26
10-18-2012, 21:03
ONe thing is that misdiagnoses listed here are the numerator...what is the denominator to evaluate the inciednce of misdiagnosis?

More and more of this misdiagnosis will show up as more and more of medical care is left to NP's and PA's.. some conditions are too complicated and involve too many systems for which NP or PA education is insufficient to manage (notably in my state their malpractice insurance last year doubled) Many just do not know what they do not know...

Finally my observation is the product coming out of medical school these days is focused on computers and tests..rarely do they listen to the patient and make an accurate clinical diagnosis based on history and exam. They treat tests...then tests beget more tests which lead to procedures not all of which result in salutary outcomes.

My academic surgeon friend says, " I can teach a monkey to operate. I can't teach the monkey when not to operate." :)

Quoted and emphasized for absolute truth.