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Kimberly Hall
06-23-2004, 10:44
Has any of you gone thru this already? I'm only 31 but after 2 rounds of Cervical Cancer and another bad pap they are saying have the surgery and do the hormones..Someone please give me advice.

SouthernGal
06-23-2004, 11:32
I've never had THAT surgery but I have had 2 cryos for cancer(1996 & 1997) and a D&C in 1994. I had an agressive doctor and he took care of the problem. I'm riddled with problems and it is one of the reasons I don't have children.

I had a friend who passed away no more than 4 months ago due to complications of cervical cancer. Her doctor was not agressive and as a result her cancer spread. She was only 33. If this is going to save your life, do not hesitate.

Kimberly Hall
06-23-2004, 12:13
I am going to go thru w/it. I've had 2 bouts and first one was at 25 and 8months preg second was 4yrs later. They say the surgery will stop it. I just wonder what all is "true facts" of what you go thru once you've had the surgery and what the hormones do to you.
I am sorry to hear about your friend though. I have lost many due to various cancers and work w/the orgs as much as I can. Ty for your input, you are an encouragement.

Vic303
06-23-2004, 12:39
The wife of a friend of mine had all her gear copped due to bad endometriosus and some other sort of complication I don't know about (but not cancer). Her doc said she didn't need the hormones. I think her doc is messed up in the head. Within 6mo of her surgery, they are just about to the point of divorcing and IMHO, a large part of it is due to her wild mood swings and behaviors. I think she'd calm down a lot if put on hormones.

So, FWIW, if your doc offers you HRT, talk long with them about any side effects of being on it for YEARS ( you're young), weigh the risks of it vs the problems of no supplementation, and pick your 'poison'. Personally, I'd do the hormones if it was me...

But good luck with your surgery, and any irrad/chemo you might need following to ensure all the cancer is eliminated. I'll say a prayer for you today.
--Vicky

SouthernGal
06-23-2004, 13:11
Originally posted by Kimberly Hall
I am going to go thru w/it. I've had 2 bouts and first one was at 25 and 8months preg second was 4yrs later. They say the surgery will stop it. I just wonder what all is "true facts" of what you go thru once you've had the surgery and what the hormones do to you.
I am sorry to hear about your friend though. I have lost many due to various cancers and work w/the orgs as much as I can. Ty for your input, you are an encouragement.

I had my first cryo at 25, second one at 26 and was 23 when they found my tumors and did the D&C. At that time he told me he saw lesions on me and removed them with the laser while I was under. The cryos were FAR worse than the D&C ever thought about being. I've heard that now they do LEEP instead of cryo. Haven't had that done as apparently I may have shaken the cancer bug.

Are they doing thin pap on you when you go in for yearlys? If they aren't, you need to have them do that type of test. From what I hear, the cells are suspended in a different manner and lead to more accurate results than the traditional pap.

Get on the hormones. I'm hearing all kinds of stuff about women going through "the change" after menopause and you'll need the hormones to stay sane, temperature controlled and keep your sex drive and not put it in park.

And another thing--get a second opinion if you think you need one. My second opinion actually led to my finding a different doctor. My new doc is a female and she's cutting edge and actually listens to me. She recently put me on Seasonale at my request and I couldn't be happier.

Kimberly Hall
06-23-2004, 14:02
I have the specialist here in NWGA and he sent me to 3 others to make sure he was correct. Made me feel better.
I don't know what thin paps are. I have to do paps every 3 months still..stinks..and yes, I"ve had the LEEP done..it's not too bad or painful..made themput me to sleep though. I"m like a man, if they are going to touch me in that are they are going to put me to sleep lol. They take off layers of your skin to get to the good skin cells that way the good can generate in that area..It's neat how it all works.
I will look more into the hormonal treatments..and the long term effects. I have heard that it hardens your artries and stuff..that kinda scares me. Hell, all of it does but anything is better than going thru kemo again and my kids being the ages they are...I won't be able to hide the fact that momma is sick now.
I just can't imagine being layed up for 6wks though..but I will do what needs to be done..maybe by then I will have a computer and can chat w/all of you lol :) Have to keep my humor

SouthernGal
06-23-2004, 14:16
Originally posted by Kimberly Hall
I have the specialist here in NWGA and he sent me to 3 others to make sure he was correct. Made me feel better.
I don't know what thin paps are. I have to do paps every 3 months still..stinks..and yes, I"ve had the LEEP done..it's not too bad or painful..made themput me to sleep though. I"m like a man, if they are going to touch me in that are they are going to put me to sleep lol. They take off layers of your skin to get to the good skin cells that way the good can generate in that area..It's neat how it all works.
I will look more into the hormonal treatments..and the long term effects. I have heard that it hardens your artries and stuff..that kinda scares me. Hell, all of it does but anything is better than going thru kemo again and my kids being the ages they are...I won't be able to hide the fact that momma is sick now.
I just can't imagine being layed up for 6wks though..but I will do what needs to be done..maybe by then I will have a computer and can chat w/all of you lol :) Have to keep my humor

Thin paps are different from a normal pap smear in that the cells are not "spread" on a lab slide. When they pull the sample out of you, they take the whole sample and drop it into a test tube intact. The cells aren't "crushed" and therefore are easier to see in the lab under a microscope.

Here's the link to read more about it:
http://www.questdiagnostics.com/patient/womenshealth/documents/thinprep.pdf

There is a lot of info on the web on this.

Glad you got a second opinion. It never hurts. I have yet to experience LEEP (hope I never do, I wanted to scream during the cryo).

BikerGoddess
06-24-2004, 10:15
They can put you under for that? ;P I'm so getting another ob/gyn... ;6

There are some risks with the synthetic hormones they use. You have a better chance of there being improvements made during your lifetime, though, if you're still alive.

It is my understanding that there are 4 phases to cervical cancer and that the first phase isn't really cancer at all, just cellular changes that show up before cancer. What was your official diagnosis?

My paternal aunt went from a 'normal' pap to invasive cancer in a year. I've been told that cervical cancer is supposed to be slow growing, but it is best to treat it as quickly as possible.

Laura

ATL Peach Girl
06-28-2004, 06:32
errrrrrrrrrr..........

How did I miss this thread??? What type of surgery we talkin' about ladies???

a total hyst??? Been there, done that......and don't miss that monthly visitor one dayumed bit....I highly recommend it for all you ladies!!!! ;f

Kimberly Hall
06-28-2004, 08:54
I was diag w/cervical cancer at 8months preg..I had a bad pap come in..then they did the god awful "Pulp test" that stuff truly hurts..it came back bad..they did a "Leep" for that to take away the bad cells and get to the layers of good cells..then my problems worsened...and took it from there.
I have seen the doc again..and they want to try me on one more med for 6wks to see what that does if anything.
I feel like I am ready for this surg though. I don't think I would miss my monthly and the pain that comes w/it at all lol..
If they do the surgery we have choosen a hormone that doesn't help harden the artiers...and it's suppose to help improve the sex drive lol..now if I can just find a good man lol..

SouthernGal
06-28-2004, 10:01
Originally posted by BikerGoddess
They can put you under for that? ;P I'm so getting another ob/gyn... ;6

They don't put you under for LEEP or Cryo (I've had cryo, but not LEEP). I reminded my doctor after the 3 minute freezing (cryo) that "OJ killed two people in three minutes."

Certainly the most painful thing I've ever had done.

They put you under for D&C (thank goodness, from what I've heard, it is akin to having an abortion, only there is no baby). I do know, however, that during my grandmother's time, they didn't put you out.

I'd love to have all the plumbing removed, unfortunately you can't get an on-demand hysterectomy. Besides, I'd be worried my drive would go into park. Can't have that.

BikerGoddess
06-28-2004, 11:17
Originally posted by SouthernGal
They don't put you under for LEEP or Cryo (I've had cryo, but not LEEP). I reminded my doctor after the 3 minute freezing (cryo) that "OJ killed two people in three minutes."

Yeah, he tried telling me it would feel like a little pinch. Oddly enough, it felt like he was cutting living tissue. No nerves there, my ass. Doctor or no, never trust a man when he says something won't hurt on a part he doesn't have.

Laura

SouthernGal
06-28-2004, 12:31
Originally posted by BikerGoddess
Yeah, he tried telling me it would feel like a little pinch. Oddly enough, it felt like he was cutting living tissue. No nerves there, my ass. Doctor or no, never trust a man when he says something won't hurt on a part he doesn't have.

Laura

You know, my doctor at the time told me that "some women can't feel it" and that I "wouldn't be a good candidate for natural childbirth." I never believed a woman COULDN'T feel it until I my neighbor said something to me about it 3 weeks ago. My neighbor said she didn't feel a thing when she had her cryo. I keep thinking to myself it is no wonder she has such an unsatisfactory sex life.

I recall the nurse pulling the tank into the room and the doctor saying it was "only 3 minutes". I pounded my fists on the side of his table the entire time. On the way out to the car I could feel the nitrogen boiling and I thought I was going to die.

And I switched to a female doctor not long after this.

Melissa Ann
06-29-2004, 12:18
I had a LEEP not too long ago - all came out ok. I'm due for a follow-up appointment now. The LEEP wasn't too bad, had a sharp sensation for a brief moment but overall, it wasn't too bad. The worst part of it was waiting for the day of the procedure and waiting to find out the results. I hate waiting.

Melissa

seb
07-05-2004, 17:44
Originally posted by ATL Peach Girl
errrrrrrrrrr..........

How did I miss this thread??? What type of surgery we talkin' about ladies???

a total hyst??? Been there, done that......and don't miss that monthly visitor one dayumed bit....I highly recommend it for all you ladies!!!! ;f

I'm with you Peachy, how did I miss this thread. I highly recommend a Hystrectomy, I have never felt better in my whole life. I was going thru 2 bags of pads in 5 days and thought this to be normal, because I had always done it. Needless to say, it's not normal. Anyways, I have had Laproscopic, D&C and freezing of my Cervix, due to all types of Female Problems.

It's funny, woman have said they don't feel like a woman anymore, it was just the oposite for me, I was feeling so good that I felt even more feminine(sp?) than I did before.

Terrie

Kolchak
07-08-2004, 05:13
It took two surgeries for them to decide to take it all out for me. I sure wish they'd just gone ahead and done it the first time:(

I suffered all my life with hormone problems. I was wasting 2 and a 1/2 weeks out of every month being sick, and the rest of the time I didn't feel that great.

Turned out to have severe endometriosis, which had really spread itself all over the place.

Sure, I have hot flashes and problems with osteoporosis, but I would do the surgery again in a minute. I just wish they had done it sooner.

I took hormones for several years, then switched to Evista. Don't forget bone density tests.

seb
07-08-2004, 05:19
Girlfriend called last night, because they left in her right ovary, it has ruptered(SP?) and they are going in on Fri. to remove it. They told her it was going to be just like the first surgery with a 6 week recovery time. This is the 2nd or 3rd friend this has happened to. I wish they had taken my last overy out, even though I would have had to take the estrogen. It would have been not going thru the surgery again. My advice would be to have them remove both overies,it has only been 5 yrs since we both had the big surgery.

Terrie

SouthernGal
07-09-2004, 09:46
This year I approached my OB GYN (who happens to be a female) about having my tubes tied so I could get off the pill permanently.

To my surprise, she told me that she'd do it, no problem, if that is what I wanted. I should mention I have NO CHILDREN, have NEVER been pregnant, have a history of reproductive issues and recently got divorced. Truthfully, I've never imagined myself as a mother type of person.

I read an article in the paper here yesterday where doctors are fighting their patient's requests for tubal ligation. My personal opinion on this is that if this is something you are SURE you want to do, your OB GYN should comply with your request. If they don't, you should seek a second opinion from another physician.

My doctor and I decided my best option was to stay on the pill until I'm well over 40. She moved me from what I was on to Seasonale, so I now have a period every 3 months (it lasts a mere 2 days). She said having a tubal ligation would result in my "flood" periods returning and she didn't want my anemia and cramps cropping back up.

potatoho
07-09-2004, 10:28
Saw this thread.. wanted to mention my mother's experience. She had a hysterectomy about 15 years ago. Perhaps they have improved the procedure these days, but over the past few years she has had to endure rectal prolapse and several surgeries to improve that condition. A side effect of her hysterectomy was a weakening of the pelvic muscles.

seb
07-25-2004, 20:45
Originally posted by potatoho
A side effect of her hysterectomy was a weakening of the pelvic muscles.

Don't know about eveyone elses surgeries, but when they did my hysterectomy, they tightened up the pelvic walls and pulled bladder back into place.

Terrie