View Full Version : Fibromyalgia
Does anyone else have this?I've had it for about 7 years and it just keeps getting worse.I have so much pain now that I've not been able to work in 2 years.It's been so bad,I've not been able to get out of the bed for 6 days before.I have a real hard time sleeping.The other morning I was up til 12 noon trying to get to sleep.I have went up to 3 days without sleep.I have constant pain in my neck,jaws,etc.The pain is in a different place every day.It changes from my back,ankles,wrists,hips,knees,more or less all joints except my fingers and toes.The only thing that seems to help is pain pills.I've tried several different anti-inflamatories,muscle relaxers,etc. with no good results.I've tried to exercise,which always makes it worse.Try to walk around the subdivision I live in and just ends up making my ankles and back hurt worse.Now that it's summer again,the heat really hurts it.I usually look like an idiot running around in the winter with shorts and a t-shirt,but that's the only way I can handle the heat inside stores,homes,etc.Has anyone else tried anything that actually helps?
My sister has been diagnosed with FM. She seems to have it pretty much under control most of the time with medication and rest. The things that seem to set it off in her are stress and lack of sleep.
It is especially cruel that stress and fatigue set it off, but once it gets going you cannot sleep and the pain obviously causes stress. This is a really nasty condition that I do not know much more about. Have you tried physicians or specialists?
Not trying to be funny but this sounds pretty bad and it sounds like you've tried many things with no results. Have you tried to get your hands on a little reefer? It could help with the pain and sleep. Just my suggestion.
I've tried different doctors and as far as I know they are no specialists in the field.My doctor I have now has helped me more than any before him.No other doctor wanted to give me anything besides Motrin.I take hydrocodeines and they help...sometimes.Weed helps me sometimes more than the pain pills do,depending on where I'm hurting.Fibromyalgia causes alot of mental problems too.The weed HELPS my paranoia,but I've about quit smoking due to it makes my depression worst and my psychiatrist hasn't been able to find any anti-depressant that I don't have bad reactions to.One doctor I did go to highly recommended pot for the pain.My psychiatrist agrees my usage of it for anxiety,etc.
Hey garythenuke,tell your sister that drinking alcohol is really bad with fibro.It really brings the pain.Other people have said it too.It doesn't hurt to have beer every now or then,or a mixed drink when you eat out.If you drink to get drunk,you'll pay for it that night with pain.
Actually she is a teatotaller. Hasn't had a drink since the 80's. What else have you found out?
To be honest,not much.It seems no one knows alot about it.
I was diagnosed in Dec of 2002 with Fibromyalgia. The symptoms come and go, I try not to take pain pills if I can help it. Low impact exercise helps keep my metabolism up and keeps my joints from getting too stiff. I went through a period during the winter when I got up every day and felt like my ass had been thouroughly kicked, and was like "go to the gym? Yeah, right." The pain and fatigue are not so bad lately. I struggled with stomach problems for awhile and that was pretty inconvenient. I am cold a lot, this past weekend we were at the races and I was pulling on a sweatshirt while the guys were sitting around without shirts on. I have found that stress seems to kick off the symptoms more than anything. Sometimes I get down, when I think about living with this for the rest of my life, along with osteoarthritis pain, and I am only 29. Then I have to strengthen my resolve not to give in to it, cause I think that is about the worst thing I can do. I have been told I will probably be on disability before I am 40. I am going to do everything I can do to avoid this.
I know it really seems depressing sometimes,knowing you'll have to deal with this the rest of your life and knowing it only gets worse.I'm only 34 and in the process of getting on disability now.They tell me that 85% of the people who get fibromyalgia will eventually end up in a wheelchair.Have they told what they think caused your's?They think mine may of been due to overexposure to propane gas.I worked on loading docks for about 9 years running different forklifts.The heat seems to trigger mine faster than anything.I've noticed alot mental problems since I've had it.Paranoia,anxiety,depression,not being able to make decisions,and can't remember how spell like I could.I was an A and B student through school and find myself now having to reword sentences so I can spell simpler words.After I got to where I was unable to work a physical job,a gun dealer I had done business with for years decided to upgrade from selling out of his garage to opening a store front ask me to work for him.He ran a construction company in the daytime and had me running the gunshop by myself.It was a great job,but my mental problems got so bad I couldn't handle being in public.I had to quit and went for 3 months without hardly leaving my house.I hope you have better luck than I have with it.
No idea what caused mine. I have noticed that sometimes I have a harder time concentrating on things. I used to be able to read for hours on end, now I can't no matter how good the book is. I am prone to depression and anxiety when I am overly tired, I know I turn into a whacked-out shrew, but can't seem to help it. Stress at home triggers it faster than anything. It's funny, job-related stress doesn't seem to trigger it nearly as much, but then, it's not as personal as family-related stress. Interesting that heat triggers yours, I always feel worse in the winter. I try to read anything I can find about Fibro, and one article mentioned both heat and cold intolerances. I haven't had a completely pain-free day for years, but I seem to have it somewhat under control for the time being.
I'm sorry to hear you are having such a rough time with it. I do hope you find something that helps you.
My friends pothead brother was diagnosed with "fibromyalgia" and goes out of his way to do everything to make it worse. Everyone blames the "mental fog" on "fibromyalgia" but leaves out the part where they take enough drugs to kill a mule. My friends brother is now a bonfide prescrition drug addict. One of the diagnosing doctors finally had enough of his whining and told him if he didn't change a few things he was going to be unemployed, divorced, and homeless. He's pretty much heading that way.
Until he got this "diagnosis" he was pretty much ok, just some ankle pain. The minute he got his mental crutch he started walking on crutches and saying how he was only going to get worse and how he "couldn't" do this or that.
I went through a period where I was in a quite a bit of pain myself. A doctor suggested that "diagnosis" but after reading about it I decided it wasn't for me. I got a different bed, lost wt, quit my bad habits, got new friends, exercised, eat heathier food now and all of a sudden (actually it took over a year) I feel pretty good. I also have some degenerated disks in my neck that are pretty bad that cause wierd nerve things.
Watch out with the diagnosis of fibromyalgia, it can become a self prepetuating doomsday disease. All those drugs can't possibly be good.
I don't use my Fibro or arthritis as excuses or a crutch. (Or try not to). If anything, the diagnosis just gave me an answer for the mysterious symptoms, and so I could learn more about it and fight back. The only prescription I take every day is an allergy pill. I have prescription painkillers, but don't take them unless I really need one. I have been on a real "wellness crusade" lately, and hate it when I have set-backs.
My boyfriend has recently said that he doesn't know if he believes there is really such a thing as Fibromyalgia. He doesn't see how a bunch of seemingly unrelated symptoms could be lumped together under one name.
I used to believe in the diagnosis until I met or knew some people that got the diagnosis and something didn't seem quite right. For one thing, I checked the fibro websites, the symptom is mostly pain but there is no actual joint damage. Also all of the people I know have very negative attitudes and/or engage in unhealthy lifestyle practices, like smoking, drinking, not exercizing, and eating a lot of junk food.
In my case, I had allowed myself to become a fat lazy slob, quite a contrast from my previous fit self. I also noticed that in most cases my very small group of examples had or have had very high metabolisms.
In addition to having no energy, hardly enough to get out of bed in the morning, I would get "tendonitis" everytime I tried to do an activity, working in the yard, playing the guitar, or simply walking. Also my eyesight changed drastically within just a couple of years.
One of the by products of metabolism is free radicals, I'm sure you've heard of that. It's what causes a lot of age related damage and also diabetic side effects, like neuropathys and such.
I used to have a very high metabolism, one of the reasons I had gained wt is because as I got older and less active, my huge appetite remained the same. It's a wonder I didn't weight 300 lbs!!! When my bicycling accident from the past flared up it really made me take a long hard look at how I'd been living. I work in the health care field and quite frankly don't have a lot of faith in it. Both of my ankles hurt so much I could hardly walk and my neck would swell throughout the day until by night it looked like I had a cervical brace under my shirt. They gave me some strong drugs which caused so much mental fog I hardly knew where I was at!!! I only took them for 3 days but it took over a week to get them out of my system.
I knew there where some changes I had to make on my own before I should go running from doctor to doctor so I attempted to get back into the excellent shape I was in when I was younger and more fit. It seems like everytime I tried to do something I would hurt something else. The physical therepist gave me some therabands to strengthen my postural muscles and they were pretty useful for working out with (I used to work out with wts but the tendonitis thing made that very difficult). I had to watch my diet very very strictly because I was not able to be very active.
Slowly I began to get stronger and I knocked off some pounds. I took certain vitamens I hadn't taken before and made some dietary changes. Also no more bad habits - none. That was actually pretty easy to stick to because the effects of the neck meds were so bad it ruined any desire to drink which in turn did not give me a desire for the occasional ciggarette.
Now I feel pretty good. I hardly ever eat out, I started to get a shoulder problem last year and it was discouraging but I worked around that. I also got lazy a few months ago and started not taking my lunch and eating in the hospital cafeteria. I started to feel crappy again even though there was no wt gain.
I get these vitamens from www.vitacost.com called ocupower that have a lot of antioxidant stuff in them. You can go to the link and read up on it. I also take omega 3 oil and pycogenol, plus the glucosamine chondroiten stuff. And also a multivitamen from wal mart. I've since added Coenzyme Q 10 as well. I'm going to replace all this with a differnant multivitamen from the same website that has all that in it and see how that goes.
It seems like a lot of vitamens but I think it's really helped. The lifestyle changes have helped as well. I think there is a lot of truth to the oxidative stress/free radicle thing. Now if my tennis elbow acts up I wear a band a couple days and rest it and it goes away!!!! That's never happened before! I do different activities, like biking, going to the gym and stuff so one body part doesnt get overused. The YMCA I go to has these machines called "freemotionfitness" that use cables so my arms aren't locked into postion and I can work out without my elbows crippling me, it used to be a big problem.
I don't know if any of this will help you but I had to figure all this crap out myself and it's helped me, maybe it will help someone else as well. It's a task to wade through all the info and separated the BS from the real science, modern medicine has evolved into quite a bit of BS as well, I pretty much trust nothing but consider most things that make sense, I've had a lot of biochemistry and cell biology and that helps. For instance, the effect of statins on the production of coenzyme Q10 really seems to have some validity to it.
Hope this helps.
Guys, I should say that I have no idea what you experience, but wanted to give you another option for remedies.
I would look into homeopathic cures and remedies.
This place may help herbal remedies (http://www.thepowermall.com/)
The people that run the site have a talk show on gcnlive.com called the power hour.
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