women who have had a few UTIs......... [Archive] - Glock Talk

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cowboywannabe
12-18-2006, 09:07
my daughter is 4. she keeps getting UTIs. we are taking her to a specialist because they want to do a cathator, into her bladder, pump in some dye, and use ultrasound imaging to watch for urinary reflux as she pees.

sounds like its not too bad, but she is only 4 and im more scared than she is but i cant show it.

have any of you ladys had this done? if so can you shed some light on the proceedure, what should i/she expect, any pain?!

how long does it take?

her PED says she keeps getting e-coli, and its maybe from her not wiping good after she goes #2. we do what we can at home, but in school the teachers have other kids to look over and try to do a good job to ensure she is clean, but you know how that goes....


weve stopped the buble baths, she was on septra fro a while and it does the trick, but a few weeks to a month later, shes got it again.....

is this something little girls can grow out of? or is something that has to be treated for a life time?

any personal experience will be much appreciated.


thanks.


p.s. we are taking her to the children hospital in Atlanta. how are they regarding this kind of thing, if you know.

Mrs. VR
12-18-2006, 09:16
I don't have any words of wisdom regarding the UTI's (although, I DO remember having them as a kid, and taking baths with vinegar in the water for some reason? :headscratch: )

Anyway, other than that, I DO know how scary it is when your child is having any kind of procedure done. Chances are it's gonna be harder for you, or at least more scarring. When our youngest was 1, he had to have a milk scan. Basically, they gave him radioactive liquid and strapped him to a table for an hour and a half. That was the WORST hour and a half of my LIFE. :freak: He of course doesn't remember any of it, and doesn't seem any worse for the wear. ( oh yeah, and When he had tubes put in , the doc had me stay in the room while they put him to sleep, holy cow, I thought I was gonnna :faint: again, way worse for me than him. )
:supergrin:

So, you'll be in my thoughts for sure, just try to hang in there. :hugs:

cowboywannabe
12-18-2006, 09:20
thanks, but im the last person who deserve a prayer. but say one for my Sofia if you would.

MD Mountain Man
12-18-2006, 09:25
Originally posted by cowboywannabe
my daughter is 4. she keeps getting UTIs. we are taking her to a specialist because they want to do a cathator, into her bladder, pump in some dye, and use ultrasound imaging to watch for urinary reflux as she pees.

sounds like its not too bad, but she is only 4 and im more scared than she is but i cant show it.

have any of you ladys had this done? if so can you shed some light on the proceedure, what should i/she expect, any pain?!

how long does it take?

her PED says she keeps getting e-coli, and its maybe from her not wiping good after she goes #2. we do what we can at home, but in school the teachers have other kids to look over and try to do a good job to ensure she is clean, but you know how that goes....


weve stopped the buble baths, she was on septra fro a while and it does the trick, but a few weeks to a month later, shes got it again.....

is this something little girls can grow out of? or is something that has to be treated for a life time?

any personal experience will be much appreciated.


thanks.


p.s. we are taking her to the children hospital in Atlanta. how are they regarding this kind of thing, if you know.
Antibiotics also kill the bodies natural flora and leave the body prone to further infection. Here is a link that might help some.Link (http://www.urologychannel.com/uti/alternativetreatment.shtml)
Her diet probably is a big culprit. Cut out a lot of the refined sugars and partially hydrogenated fats. Depending on where you live you may be able to give her raw unpasteurised milk. Kefir, and other cultered foods would also be a good idea. Get more organ meats into her diet when you can. Get organic foods whenever possible to reduce her intake of pesticides. She may very well be not tolerating something in her diet like soy, or wheat. Another great resource would be The Weston A. Price Foundation (http://www.westonaprice.org/index.html). Good luck.

SouthernGal
12-18-2006, 10:18
I can only tell you what I know as a 35 year old woman who has had them from High school up until a year ago.

Most of the UTIs out there are caused by ecoli. Mine were. It was explained to me on my first trip to the urologist that due to the shortened length of urethra, it's easier for bacteria to make it into the bladder and infect. Because of the warm environment, it's easy for the bacteria to multiply rapidly.

I was scoped. I didn't undergo the procedure you're discussing below. No dye was injected into my bladder, they only used a camera to look around.

What they found in my situation was that because of REPEATED infections, my bladder lining has "eroded" on the inside. Imagine what a piece of wool looks like when you scrape against it and you'll know what my insides looked like. Ecoli tends to "bore" into the bladder wall and can damage it permanently which is why I kept getting them repeatedly and easily. I will be prone to infections for the rest of my life because of this.

The scope itself was not painful. About all I felt was pressure--uncomfortable, but not painful. They were supposed to knock me out but the IV wasn't inserted properly, kinked and I never got the drugs (versed) into my system. I literally sat up on the table and watched the entire procedure.

I know how painful these things are and I feel badly for your daughter. A great urologist fixed me up and I hope you find the same type of result.

PilotKitten
12-18-2006, 10:52
I've had the catheter thing done (no dye though). It's pretty uncomfortable (odd pressure) but not painful at all. Because I was visibly shaken when they told me they'd have to do the procedure (I was in the ER), the nurse re-assured me that they were using the smallest size possible so I'm sure that helped.

At her age I doubt it'll be something she remembers after a few years.

I've gotten about 3 earlier this past year (from the bath)... the doc told me if I got one more they'd have to do more tests... so I've been super-vigilant. Drink lots of water... occassional cranberry juice... go to the bathroom right after woopie (obviously not needed at age 4 lol), no baths and keeping soap away from there, etc.

kcb
12-18-2006, 12:57
I have had several UTI's over the years, and they themselves can be extremely painful! The most painful ones have been post-operatively after I've been catheterized! But I doubt that the two were the least bit related. I have had an IVP before, too, but not the procedure you are talking about.

I'll spare you a story here.

Just make sure that they are gentle with your daughter and they approach her with respect. You know your little girl; make sure they know how to best approach her!

Be there to support her.

My daughter was an awesome patient, until two nurses scared the bejeebees out of her when she was four!

:angel: :angel: :angel:

God Bless your daughter, and daddy too!

:thumbsup:

MrsKitty
12-19-2006, 07:41
I have had a cystogram done twice in about a year. Last time was a few months ago. I have had several done over the course of my lifetime.

The cath is uncomfortable but it is not painful. It also will feel very weird but it does not hurt.

At one place, the contrast was warmed. At the other place it was room temp. It didn't matter either way because it was COLD as ice in my bladder.

They fill the bladder to the point of feeling like you are going to burst if you don't pee NOW. It is done under radiation so they can see when it is full plus they go on what the patient says because some people can hold a lot more. Regardless of what she tells them about feeling like she is about to explode, they will fill her until the bladder is expanded but not to the point of hurting. They used a half gallon on me the second time. First time I didn't notice how much.

They will ask her to pee while laying on the table. It is very hard to do. I could not do it. The first time I tried until my bladder was sore after the test from straining. It is a mental thing. Rarely can a girl do it. If she cannot, they will let her go to the bathroom and then back to the table. They can see if there is contrast going up then but it is not as effective as what they can tell from peeing on the table.

It took about an hour from the time I walked into the room until I walked back out. The cath takes a few minutes to insert and prepare for. The contrast takes 10 minutes or so to fill the bladder. It is gravity fed, not forced in. Then the xrays take a few minutes. Then she will be told to pee and this varies depending on if she can do it or they eventually send her to the bathroom.

What kind of panties does she wear? Cotton is the best for her as silky stuff can contribute to infections. Later, avoid thongs because they are a path for bacteria to run.

I have had better experiences at hospitals having tests done, especially this one, than at freestanding clinics. This test is normally done on children and rarely on adults. A children's hospital will be well experienced in the procedure and they are used to uneasy children.

Ask me any questions you want. I have had ever test known to man on my UTI except for the scoping SouthernGal has had done. My problems are isolated in one kidney.

cowboywannabe
12-19-2006, 07:52
thanks for all of your comments ladies......

misskitty, you say its in one kidney.....so what does that mean?

im hoping for my daughter its just a hygene thing and not something that will lead to kidney infections or bladder infections/damage....



she has been on amoxosillin for the past week and everything has cleared up....just like with the septra....

her PED wants this proceedure done to rule out reflux, not because its suspected....

anyway, only time will tell.

two girls in her class had it done already...one was deemded to just need better hygene/wiping after the potty, the other has the reflux but can grow out of it....but has to take an antibiotic pill every night for a year until rechecked.

SouthernGal
12-19-2006, 07:59
Originally posted by cowboywannabe
thanks for all of your comments ladies......

misskitty, you say its in one kidney.....so what does that mean?

im hoping for my daughter its just a hygene thing and not something that will lead to kidney infections or bladder infections/damage....



she has been on amoxosillin for the past week and everything has cleared up....just like with the septra....

her PED wants this proceedure done to rule out reflux, not because its suspected....

anyway, only time will tell.

two girls in her class had it done already...one was deemded to just need better hygene/wiping after the potty, the other has the reflux but can grow out of it....but has to take an antibiotic pill every night for a year until rechecked.

I can tell you in my situation, I was following ALL the doctor's orders and wiping correctly, eliminating after sex, drinking plenty of water, etc. but continued to get them. Damage to the bladder wall is like that. It makes it SO easy to get a UTI in the first place that there is no getting away from it.

They kept telling me it was something I wasn't doing and I kept telling the GP that I was following orders. And mine were BAD. My urine samples were straight blood and my chart was marked TNTC on red cell count for urine--"Too Numerous to Count".

I should mention that almost any antibiotic would clear mine up completely and quickly. I took Levaquin and Macrodantin and one other drug. All worked.

JWish
12-19-2006, 09:57
Just a suggestion... acidophilus and yogurt with live culture will get her natural flora back,which antibotics totally trash, and real cranberry juice(make sure it is made with real cranberries) stops these infections in their tracks. I read that there are now cranberry tablets as well. If you have no knowledge or available information on this, a good pharmacy or health food store can be very helpful. The damage done by the antibotics will take a while to repair, but the cranberry juice works within a day or two. I personally am a big fan of trying natural cures first.


I have luckily not experienced this problem myself, but have known women that it worked for. Like I said, just a suggestion.

SouthernGal
12-19-2006, 10:28
Originally posted by JWish
Just a suggestion... acidophilus and yogurt with live culture will get her natural flora back,which antibotics totally trash, and real cranberry juice(make sure it is made with real cranberries) stops these infections in their tracks. I read that there are now cranberry tablets as well. If you have no knowledge or available information on this, a good pharmacy or health food store can be very helpful. The damage done by the antibotics will take a while to repair, but the cranberry juice works within a day or two. I personally am a big fan of trying natural cures first.

A word about cranberry juice. NEVER let your kid have this stuff once she already has an infection! It raises the ph of the urine and makes going to the bathroom even MORE painful.

Cranberry juice is fine so long as no infection has already set in. Due to the acidity, it will help the bladder fend off the bacteria.

MrsKitty
12-19-2006, 13:27
If the problem stems from kidneys, the person should avoid cranberry. It is ok for bladder infections but not kidneys.

MrsKitty
12-19-2006, 13:34
Originally posted by cowboywannabe

misskitty, you say its in one kidney.....so what does that mean?



As a child I had repeated infections in my left kidney. They left me with masses of scar tissue instead of normal tissue. There is an extra tube from the kidney to the bladder on that side. I have some stones in there that I cannot pass. The kidney is smaller than normal too.

When I have a new person see my xrays/films/scans the first time, they always freak out it looks so bad.

The kidney is functioning at 27% of total output so removing it is not an option for me.

SouthernGal
12-19-2006, 13:42
Originally posted by misskitty5077
If the problem stems from kidneys, the person should avoid cranberry. It is ok for bladder infections but not kidneys.

Correct. Mine was frequent cystitis as caused by bladder wall erosion. What was your "medical" diagnosis? My infections never moved any farther up the chain than the bladder.

I should mention to anyone who doesn't know that bladder infections CAN be serious if they move up the urinary tract.

MrsKitty
12-19-2006, 13:56
Chronic phenysometing? In English, chronic kidney infections.

Why do doctors have to use such big words that the normal person can't remember? I will look it up later but I can't take the time to do that now (I should be working now, as it is).

MrsKitty
12-19-2006, 18:27
Chronic pyelonephritis is persistent kidney inflammation that can scar the kidneys and may lead to chronic renal failure. This disease is most common in patients who are predisposed to recurrent acute pyelonephritis, such as those with urinary obstructions or vesicoureteral reflux.




Cowboy, I doubt your daughter has anything at all like this going on. Don't start reading and panic yet, ok?

Whatever you do find out, keep us in the loop. Between me and SG and some more here who haven't found this thread yet (I bet she is vacationing or tied up at work as she hasn't posted in a few days that I have seen), we are a wealth of information on kidneys/bladder/UTIs. All of us are more than willing to share what we know. :)

cowboywannabe
12-21-2006, 19:39
well ladies,

it turns out that she has a grade 2 reflux on the left side......

will be on a mild antibiotic for appx. one year and be re-evaluated.

says its not uncommon for girls her age to get this and then out grow it in a year or so....says its just the way the body grows and sometimes this happens.......


will see a urologist in a month for some follow up......

im feeling a little better now, but im not counting on anything until shes clear.......

now, how to come up with the appx. $3,000.00 the ins. company wont pay because of yearly deductables and 20% co-pays....



thanks for all of your advise and sharing you experiences....

Mrs. VR
12-21-2006, 20:17
thanks for the update! I hope the medication keeps her clear and pain free. :angel:

kcb
12-21-2006, 20:53
Originally posted by cowboywannabe
thanks for all of your comments ladies......



im hoping for my daughter its just a hygene thing and not something that will lead to kidney infections or bladder infections/damage....



two girls in her class had it done already...one was deemded to just need better hygene/wiping after the potty, the other has the reflux but can grow out of it....but has to take an antibiotic pill every night for a year until rechecked.

Proper hygiene is important, though, too!

You can NEVER discount that when you are a girl or a woman!

My mother drilled that into our heads growing up. She suffered terribly from Chronic cysitis.

Ladies, there is a proper way to cleanse yourselves after using the bathroom, and a proper way to keep clean.

I was trained by "the expert" on the subject,
My Mom! :hearts: :hugs:

MrsKitty
12-22-2006, 07:23
Originally posted by cowboywannabe

will be on a mild antibiotic for appx. one year and be re-evaluated.



now, how to come up with the appx. $3,000.00 the ins. company wont pay because of yearly deductables and 20% co-pays....




What antibiotic? I took them daily from the time I was a few years old until early teens to prevent infection. A few years ago, during the Anthrax scare, I was on Cipro daily for six months. Later, I went to Levaquin daily for several months and trimethroprim daily for a few years.

If she is taking them daily, be super paranoid about slathering her with SPF 50 or greater sunscreen when she is going to be outside. The sun sensitivity is cumulative with certain antibiotics.

Fed her yogurt often to replace the good bacteria that the antibiotics are killing. If you don't, yeast will eventually make her very miserable. I get blisters in my mouth, disrupts digestion and other small things from it. Luckily, I have never gotten the "traditional" yeast infections but I figure that is only a matter of time :upeyes:

About the bills: I am in NC and so long as you pay each one a little bit each month, there is nothing they can do to you and they can't report it on your credit. My lawyers advised me to pay $1-$5-$10 a month on my bills prior to settlement when I was involved in a wreck. It may be different where you are but medical bills fall into a different category than the regular bills.

:)

cowboywannabe
12-22-2006, 19:34
good idea on the yogurt. will do, she likes the fruity stuff anyway.

vectra or bactra or something like that is the new dope shes going to be on.

the voltures will get their $3,000.00, but it will be $20.00 at a time once a month for the next decade.....

MB-G26
12-22-2006, 23:32
try to make sure that she doesn't "hold" her bladder when she would otherwise need to or prefer to go to the bathroom instead. School can be a bad place for this scenario, as some kids will use bathroom trips to break boredom or whatever so some teachers kind of rule that aspect w/an iron thumb. Make sure that her school 'nurse's office' records and whatnot indicate that she indeed has a medically diagnosed bladder issue AND IS TO BE ALLOWED TO 'GO' TO THE BATHROOM IRRESPECTIVE OF WHEN OR HOW OFTEN SHE ASKS, AND IRRESPECTIVE OF (that all too short of time for) SCHEDULED "BREAKS" BETWEEN CLASSES, LUNCHTIME, ETC.

Jane
12-24-2006, 14:16
I will add a general observation on the UTI treatment question.

I've had several, generally treated with antibiotics.

Then a situation started to develop and my regular doctor wasn't available. I looked online and came across some stuff that was supposed to help.

I generally don't believe in the health food store nonsense, but this worked. It's a sugar called D-Mannose. What it's thought to do is to prevent e.coli bacteria from attaching to the walls of the bladder. Here's one link. (http://www.healingtherapies.info/D-Mannose.htm) Google will provide a number of others.

It actually worked for me in a couple of days. Didn't just suppress it, but made it go away.

BTW also... anybody who's suffered through a UTI knows how painful it can be. There's an OTC med that doesn't cure it, but cuts the pain until the infection is gone. Brand name is Uristat (http://www.drugs.com/mtm/U/Uristat.html) and it's available at most drug stores. It's also available in a prescription-strength under the name Pyridium.